The Guessing Game

I never know what each day will bring. Some days are better than others. He's been pretty good for almost a week now. More alert and even talking with me and answering questions more readily than before. He still has the cough. No explanation for that. Perhaps some type of aspiration due to his diminished swallowing ability. Yet he was evaluated 2 times while hospitalized and each time he "passed with flying colors" but he still drools at times and holds food in his cheek. I can usually tell if the day is going to be a good one because he says good morning to me upon waking up. He said good morning today and he's been pretty alert throughout the day according to his aide. He didn't eat lunch well but ate breakfast well and ate a decent dinner.

I spoke with the dialysis social worker today. I wanted to make sure she had arranged the transportation for his medical appointment that's coming up on 6/29. She hadn't so it's a good thing I called. I also have yet to receive a weekly weight that was promised to me a week ago. She told me that the physician wrote the order and it's on his chart. She emphasized that order and hopefully I'll get his weight tomorrow upon his return from dialysis. So this shows you that you have to continually go back and check and double check on things that should have been taken care of already. I also got an appointment card reminder of an appointment that I didn't know he had for that same day. Yep. The dialysis center (I'm assuming) has once again scheduled an appointment with the vascular surgeon without talking with me about it. I have asked them over & over not to do that because I want to be able to go to appointments with him and I need to know up front when they are scheduling appointments in order to get time off to go. This, however, has yet to occur. It's like talking to a wall with these people. I feel like I'm in some sort of power struggle with my own husband's itinerary. They apparently don't lose a moment's sleep over our struggles and tend to look down their noses when I dare question them.

So back to back appointments on the same day should go over really well (note the sarcasm meter is on overload here). It will be nerve wracking for me and he'll be pooped out. Well, I guess it's business as usual. Frayed nerves and too tired to participate in life is becoming somewhat the norm in our household.

Stay tuned. I'll update ya on the day of medical overload.